October 9, 2012

random

I thought that an update on all things Salem is long overdue.  There have just been so many more pressing things to share with you all recently.

Here goes....

I cannot believe that the first quarter of the school year is already nearly over.  Where does time go?  We are loving our new school venture (a combination between homeschooling and Christian school) this year.  The kids are having the best time.  The last few weeks of adjusting to a very hectic curriculum has been so crazy for me. Thankfully, I think we are finally getting in a groove. I am grateful for a very academically challenging curriculum this year--even though it is stretching us all in different ways.  Getting out of our comfort zones is always a good thing.

The part-time school our children are attending has a strong emphasis on adventure and the outdoors--it is one of the things that attracted us to this particular school, especially for the boys. They have a very unique program that teaches older children leadership skills, discipleship and mentoring while experiencing God's beautiful creation. Connor is in his element!  Mountaineering, canyoneering, repelling, and camping is just his thing.  He literally cannot get enough of the great outdoors.  What a joy it is to watch our oldest son grow and mature in the Lord--while doing something he absolutely loves!  Such joy.

The adjustment to having the older children gone two days a week has, by far, been my greatest challenge.  I am so used to having them here with me 24/7.  I love having my children at home. But I know that they are right where the Lord has planted them in this season. When Kael and Hasya come home, I know the two days of not having to do schoolwork will be a huge blessing.  Both children are going to have so many doctors' appointments and therapies (especially physical therapy) which I can schedule without having to worry about disrupting school--another reason why we chose to do something a little differently to the way we usually do homeschool. We are so thankful to the Lord that we have this option for school where we live.  So far it is turning out to be a beautiful blessing for our family.

Many of you have written to ask me when I will be able to travel back to Bulgaria to bring Hasya and Kael home.  I really have no idea.  I know that everything has been approved as far as the U.S side of the paperwork goes--now we just wait for the Bulgarian government to do what they need to do.  I will definitely keep you posted as things progress.  We are all longing for the day when these two precious blessings will be a part of our family--it cannot come one day too soon.

One of the biggest issues that I am struggling to get my head around is how to bring Hasya home with as little stress as possible.  Just taking her out of the orphanage and into a strange environment is going to freak her out.  The flights home?  Oh my!  Not only is she going to be stressed by all the stimulation, but she is also going to be so, so physically uncomfortable.  Her frail little body is so desperately contracted, her muscles atrophied.  Her limbs no longer straighten all the way.  Her arms are permanently stuck at right angles. Also, knowing no other position but lying flat on her back in a crib for nearly fifteen years, she hates being in the sitting position.  I'm quite sure it must hurt her stiff bones and muscles being in an upright position.  Poor little darling!  How in the world am I going to make the journey home as comfortable as possible for her?  I have NO idea!

Any advice from those who have been there, done that would be greatly appreciated.

Hailee is a little over two weeks into her strict new gluten-free, dairy-free, peanut-free diet.  She is doing well!  Praise God! I have already noticed a few changes in our littlest lovie.  Her fingernails and toenails are no longer all cracked and dry.  The skin on her face is not as red, dry or flaky.  Her lips are no longer dry and cracked.  And her stools (sorry to be graphic) are finally "normal."  The change in what I feed Hailee has not been nearly as stressful on me as I thought it would be.  It's been pretty easy, actually.  We generally eat very healthy as a family and I have found that cutting out the foods Hailee cannot eat has been as easy transition.  I have not cut gluten out of everyone's diet yet, but we are definitely all eating way less than we used to eat. Added to that, a lot more fruit and vegetables mean that we are all eating even healthier than we used to.

Oh, one extra little blessing that I found on my quest to feed Hailee and my whole family healthier is a fruit and vegetable co-op (Community Supported Agriculture) in our state.  What a fabulous idea!  Incredibly fresh, organic produce for way less than we pay in the stores (where I can never afford organic) delivered to a location two minutes from my house every Thursday.  I got my first delivery last week and was so impressed by the quality and the amount of our share for our large family.  We even learned what kohlrabi was after having to google it to find out what the heck to do with that thing.  It's a turnip thingy, in case you never knew.

I am so very thankful for all the advice I got on this post.  It truly has been such an incredible resource to me on this new journey with  Hailee.  I have ordered many of the books and scoured blogs and websites you all shared!  So much wonderful information.  Thank you!

Speaking of Miss Hailee, the time has come for her to start speech therapy with Harper and Haven this week.  Hailee is such a busy little love.  She does not sit still for a single second.  She is constantly on the move, and if there is something in her path, she tosses it aside with brute force (yup, she's tough!).  Hailee is a constant source of entertainment in our home--she is just so sweet and her quirky ways keep us giggling. She is affectionately known to all who know her in real life as the Tiny Tornado. Speech therapy?  I have no idea how Miss B, the speech therapist, is going to teach this kid to speak!  When I asked her, she responded with a chuckle (because she knows Hailee).  "I didn't say that I could teach her how to speak...but hopefully we can give her a way to communicate!"  Bring it on, Miss B! Should be fun.

I am still loving my ridiculously early morning workouts.  Getting back to living a more disciplined life has been so good for me.  I am back on the spinning bike and enjoying it so much. I feel so much fitter and healthier than I did four months ago. While my family still snoozes in the morning, I am doing something that I absolutely love!  

Our nights are freezing cold and we're quickly heading into winter.  Living at 8,500 feet means that fall bypasses us. We have two seasons up here--summer and winter.  If you have read my blog for a while you will know that my Southern Hemisphere blood is not a fan of the cold weather. Like, NOT!  When my flesh wants to complain and whine (and it sure does!) about the fact that I wish winter never existed, God is so gentle and kind to remind me that it is He who holds the weather in His hand...who am I to complain?  The weather truly seems too insignificant in the bigger picture.

I have been so blown away by the selfless giving and the amazing way you have all rushed in to help with the various needs I have shared here recently--from spreading the word about the children in Hasya's orphanage, to helping find young Zack the family he has longed for (if you missed the wonderful news, you can read it here) and to helping the Boothe family to sprint across the finish line....I appreciate it all!  You guys are so amazing and your hearts for the Lord constantly encourage me on my own journey.  Thank you for teaching me so much about what it means to live a life that longs to do "whatever"...and a life that longs to be faithful in the small things God sends our way.

Thank you for journeying with me.  You are all such a blessing and I appreciate your support, your advice when I have a need, and the fact that you take time to read this little blog of mine.

Our God is an AWESOME God!

Have a super blessed day, everyone.

26 sweet thoughts from friends:

Melissa said...

Adeye,

I so enjoy your blog! So thankful for how our Father shines through you and your family. You may know about this already, but our therapist just suggested a pressure vest to help our "tiny tornado" focus in all his therapies. Just wanted to share. Many blessings!

Amylblackburn said...

How about a SnuggleWool blanket? It is a wool fleece with a cotton backing. Wool is incredibly therapeutic for long times in one position.

Anonymous said...

I believe that most airlines offer in-flight bassinets if she'd be more comfortable lying down! They only allow them in certain seats though for ample room so you need to let them know when booking your flight. Hopefully that helps! Can't wait for them to be home for good! Also, the new school sounds awesome! Rock climbing? Canyoneerig

Alysamackay said...

About your question for the flight home... You could always hold Kael, and lay Hasya down on her and kael's seat. it might be a little uncomfortable for you, but it might make her more comfy.

Cjoypilot said...

i am so loving reading your blog... can't wait for you to have your two new babies home too!! Blessings and Gods favor be upon you today.

nogreaterjoymom said...

 I have never heard of that!  Will definitely look into it.  Thanks!

nogreaterjoymom said...

 Thanks for sharing!

Rebecca said...

Adeye,
I always look forward to your posts. I don't always comment, but I always read them and I do pray with you and for you when you post requests. God is doing wonderful things through these little blogs and through His people. It's miraculous and inspiring to say the least.
Blessings,
Rebecca

Alison Druckemiller said...

 Dear Adeye,

As missionaries, we have flown tons overseas like you have-with and without kids.  I don't know if you have "status" on a certain airline, but if you do, you can call the frequent flyer hotline and talk directly to the airline and see what they suggest.  Even if you don't have "status", I would strongly recommend calling the airline.  They might be able to flag your ticket letting the airline attendants know you are flying with 2 special needs passengers.  You can order baby food, juice, etc. for them at no extra cost.  Another thing that I would investigate is a sky cot or bulkhead bassinet for Hasya.  I would think that she would be under weight restrictions, and that would enable her to be on her back for a lot of the flight.  If there is anyway that you could get her accustomed to certain music (like some nice soothing classical music) in earbuds or headphones as soon as you can bring her to the hotel (might be WAY overstimulating), then you could use that same music as she flies.  That might be comforting and might make the sounds of the flight more tolerable.  There is just so much continuous loud noise on a flight.  I am sure that because of her age, they will make you buy a seat, but the extra room will be worth it. 

I would talk directly to the airline and see if you can even get a doctor's letter explaining the "medical emergency" nature of this flight to allow you the things that you require/request.  Otherwise, bulkhead seats are often first come, first serve.  If you have a good relationship with your kids pediatrician, you could problaby get him/her to write such a letter.  I would even consider having it notarized.  Most doctor's offices have notaries on their staff.  I would honestly present this flight to the airline as a medical emergency.  Pre-boarding, etc.  

As I mentioned, we fly a lot, and it would be very rare for me to ever consider what I have suggested, but I think this is the time for such a thing.  Our daughter is adopted from China, and I didn't request a sky cot when we brought her home, but I think for this case it is certainly warranted. 

I hope this helps and is not overwhelming.  I have been praying for you and your family and will continue to do so as you follow what God has called you to do. 

Alison

Shannon Dingle said...

We had our Zoe - who was 24 inches long and 12lbs, 14oz in one of the bulkhead bassinets. I know they didn't care about her age - they just needed to know her length and weight. I know you won't be flying the same airline we did since ours was an Asian airline, but I agree that calling and asking about options is your best bet.
Praying that whoever is on the other end of that call responds with grace and compassion!

Anonymous said...

Another suggestion is a lying-down car seat. I work in a NICU and for our babies who are going home but can't sit in a regular car seat for some reason, there are ones that allow the baby to lay flat. It also might be useful for your car until she is able to sit up a bit.

I look forward to following H and K's journey home. Blessings to your entire family.

nogreaterjoymom said...

 Thank you to both of you!  SO appreciate your advice and kind words.

denie Heppner said...

praying for you all, adeye...re bringing hasya home, i'd recommend that you book the front seat on the aircraft with a baby bassinet. put memory foam in the bottom of it and just leave hasya in it. the airlines i'm sure will accomodate you for this once they hear the story! lots of memory foam (either a pad or a pillow) will ensure that her bones/muscles are not strained, and don't try to change her position more than what she is used to. also keep her well hydrated- airplanes are so very dry. praying that she will make the trip smoothly and that the loving hands of mommy and her heavenly Father's angels will protect and guard her. don't worry! she'll be fine. amen, and so it shall be.

Rebatate said...

waking up early , while you are biking away, to read your message just so I could get myself centered in what is truly important today.  Centered in Christ !  Thank you for sharing your days and thoughts and family with the internet world.  Such a witness , you will someday know how much you bless us in the internet world!!

Svenandruthie said...

I'm assuming your husband is coming with you to Bulgaria to bring home Hasya and Kael home - ?  (Otherwise, I can't imagine how you will be able to carry them both with their severe needs, especially Hasya!)

nogreaterjoymom said...

 Not my hubby.  But I will have extra hands to help :)

Dawn Wright said...

Praying for you as you prepare to bring your babes home.  Praying others will have wisdom to help you with that!  PRAYING for you and your family in your next journey :)

Christine N said...

Love the update...thank you for sharing your family with us. To God be the glory!

Merrawyn said...

Adeye,  I don't think you will want to post this in your comment section but over the past couple of weeks each time I come to your blog, and it is daily, I just feel the need to share with you some of my beliefs. I have come to admire and appreciate how important your family is to you and the testimony you bear of God's goodness.  Although my family is just beginning I want to pattern my life after yours in rescuing some special spirits once my husband and I with our teeny baby are done school.  I really believe that the call for women on this earth is to embrace their roles as mothers and teach their children of His ways so that we can once again live with Heavenly Father again; and continually this is what I see you do.  In our religion we believe that families can be together forever and once we die and return to live with God that the covenants we make here on this earth will not be void or broken and that you and your husband can be sealed for time and all eternity and the bonds of holy matrimony will not be broken.  

I have to be truthful in sending this message because I don't want to think that my religion is better than anyone else's and normally I would not share my beliefs so openly because I fear what others will think or say about it but the feelings have been so strong that I cannot go another day without saying something.  

You are a wonderful person and God is working miracles through you and He is so grateful for the huge and loving heart you have for others.  The religion that I wanted to share with you fits so easily into your beliefs and what you do that I think you would be interested in taking a look at it.  My family belongs to The Church of Jesus Christ of Latter-day Saints... commonly known to many as Mormons (but this is just a nickname based off The Book of Mormon which we believe to be scripture that comes from the Ancient Americas that goes hand in hand with the Holy Bible.)  I really just wanted to share with you some websites about our church because of how important family is to you and how important family is to our church I think this may be something that you would like to look into if you ever have time to spare; which I know is limited.  The websites you can learn more about us are lds.org and mormon.org.  

I will even share my personal blog with you so that you can put a face to who I am. It is merrathancristancho.blogspot.com  And if you are not interested, I hope you are not offended by this message but I just want to say again how wonderful you are and how much I appreciate how you have truly set the example to let Heavenly Father shape and mould you with His hands.  

Sincerely,
Merrawyn

kimi said...

Start preparing now, for sure!  Definitely call the airlines and see what they can suggest.  Also remember that the seat arms do come up.  You may have to buy an extra seat, but having two seats for Hasya means you can raise the arm inbetween and lay her down.  However, I know that's expensive.  You should also call a good children's hospital and arrange to speak with the medical transport team.  Find out what they have that you might be able to borrow.  I'd not use any music or headphones, too stimulating, not just the music, but the feel of something on her head would also be too new.  From when you get her, see if she will accept a blanket thrown over her as if you were nursing her in public.  This way you can shield her any time any where.  On my flight home, in the in-flight magazine, I saw an ad for an inflatable cushion that goes on the floor where one's legs would normally go.  This extends the seat to allow a small child to lie down without any gaps.  Also be sure she's warm enough.   A super thick quilted sleep sack might help her feel safe and cozy and warm as well as provide her with a lot of padding.   It can get chilly on planes.  Don't worry about her ears too much, her biting on her little hands might do the same for her as chewing gum, to help her equalize the pressure.  Bring ear plugs for her, though the white noise of the jet engines might actually sooth her.  Definitely get some kind of padding for her from the minute you get her.  Use it in her stroller and anywhere else she is, whether it's memory foam or lamb's wool.  Ask the medical specialists or therapists what's best.  I don't know if you were able to see her entire body when you were there, but she might have bed sores.  Bring treatment options and know how to use them.  Remember, she's survived so far, and God will be with you and her the entire way.  I know you'll want to pour nutrition into her from the moment you get her, but remember that she might not be able to absorb it and it can cause her tremendous pain and diahrea, which can dehydrate her.  If you can, make sure she's as well hydrated as possible as soon as possible and keep her well-hydrated throughout the plane ride since the air is so dry.  Keep her diet as easy to digest as possible.  Find out under what conditions she might need extra oxygen and know how to get it and use it.  If she panics, it could put stress on her that might necessitate the need of oxygen.  Just watch her lips and nail beds and you'll know.

Chris said...

It has struck me a couple of times that Hasya's stress in being in a sitting position could be because it makes her dizzy. I'm not medical at all but I remember in reading the book 'Joni', that she had to gradually be introduced to being raised up from a horizontal position and this after a much shorter time than 15 years! I also remember when I had total bed rest for a threatened miscarriage, how wobbly and dizzy I felt when I was able to get up after just 3 days. Just a thought.

nogreaterjoymom said...

 Thank you for sharing your sweet heart with me, Merrawyn.  I loved hearing from you.

nogreaterjoymom said...

THANK YOU for all the advice, everyone.  I appreciate your thoughts and ideas SO much!

Hugs
Adéye

Lisa R said...

There is a book I would recommend you get. It's called The Healing Code. This book has a method for healing emotional issues, and it can be done on and for children. I have used it on my own children and seen results (the fear of storms that was caused by a tree falling on the house over my daughter's head was all but gone in 6 minutes, among other things). The technique often results in the body healing itself of physical ailments, and I had thought of telling you about it foe Hailee, but when I read this about Hasya, I knew I had to tell you. The technique was discovered by a Chriatian man and is not New Age or anything like that. I actually pray during the process and quote Scripture!

If you have any questions, please don't hesitate to contact me.

http://lifeofahappymom.com/blog

C O said...

Adeye ~
I have been following your journey for a while now (I can't remember how I found your blog now that I think about it...) and I love your heart. You are an amazing witness for Christ, and I have felt God speak through your words on many occasions.

We also flew an Asian airline bringing our two munchkins home from China, and the baby bassinet (if one is available on your airline) would definitely be a great option for Hasya. They hang right in front of your seat in the bulkhead seats. I like the weighted vest idea, but perhaps a weighted blanket might be better for Hasya given her severe contractures. Weighted vests and blankets have a very calming effect on the nervous system.

(((hugs))),
chris in longmont
mom to 3 wild boys
http://teamoehlkers.blogspot.com

Sarah said...

What about using an infant carseat like a Graco Snugride 32 for her? (Assuming she has a torso that is short enough) that would also give you a hood that would help keep stimulation out.

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