May 11, 2009

Fighting Discouragement

Isn't it amazing how we humans just adjust. When God throws something new at us, we adjust, with His help. When our circumstances change, we adjust and get on with it. We have an amazing ability to adjust to 'new normals'.


So it has been with Haven. We have adjusted. Pretty well, actually.


But, can I be real with you?


After a few days away from home, I am discouraged. I guess that life with Haven was just 'normal' before I left. I rarely thought twice about her inability to speak. Or her extreme delays. It was just life as usual around here. But something happened in my heart when I came home last week. I was, once again, so aware of where Haven is in her [lack of] development--something I had kind of swept under the rug for the last couple of months.


As we head toward our 8 month anniversary of adopting Haven, we had absolutely believed in our hearts that she would at least be saying simple words by now, not sentences, just words. Every therapist and doctor we have seen has echoed the same thing, "Haven will naturally learn to speak just by being in a family". But truthfully, there is nothing. Not a single word comes out of her mouth.


I am all of a sudden so aware of it all again. Her extreme delays and lack of even trying to verbalize things. Unless prompted many times, she will not even try. She lives in a world of silence, a world where she can express no needs or desires.


Haven certainly has made some progress, and for that I am thankful. Yes, she does try to put her clothes on by herself and she does try to brush her own teeth. But, the reality of it is that she very often gets it all wrong too. She can do the same thing twenty times, and then get it wrong again. Simple things that any eight and a half year old can do in their sleep, are a huge mission for her.


I am just feeling discouraged. Will she ever speak? Will she ever try to speak? Will she ever be on a par with her age group developmentally? I just don't know. We had so hoped that we would see more progress at this stage. But we are not.


Unfair expectations? Maybe. No, most probably.


We have no idea what goes on in her brain. Absolutely no idea. We are facing many decisions right now about therapy, intervention services and school involvement. What is going to be the best for Haven? Where is she going to start learning and growing. We just don't know and need wisdom from the Holy Spirit. We need His guidance in this.


In my heart I know that if Haven never progresses, if she never reaches the milestones she should, we will be just fine with it. No matter what the outcome of all this, I know the Father will enable us to parent her and love her unconditionally, which He already has. For now, though, for her and for us, I just prayed for so much more than what I see.


I am so human, so imperfect. I know the right thing to do is to walk by faith, not by sight. But, for today, my faith in this area feels so low.


Thank you, precious friends, for listening as I share my heart.


I am just fighting discouragement.

------------------------------------


Tomorrow we have meetings with the therapists who have been diagnosing Haven. Hopefully we will get some answers to our questions.

11 comments:

Chris and Sarah said...

I'll be praying for you. I'm sure it is a very hard thing to live with day to day. That precious child has been through so much in her life that it just may take more time. I'm sure though God put her with the parents that could do the best for her though.

I'm also glad you were able to have a break from everything. Sounds like maybe you need to give yourself a mom's day off sometimes.

Rachel said...

My arms are stretching all the way to Colorado to give you a big hug, you are an amazing Mama - don't beat yourself up for having theses feelings - you're allowed. I could quote you scipture etc. etc. but I would be preaching to the chior - you know this is all in Gods hands. Your obedience to God in adopting this precious child, with so many unknowns was an example to all of us. I love you my friend, what you have already given Haven is priceless.

Tony and Rett said...

I agree...it's totally ok to be feeling these things. God loves when we share our joy AND our aching heart with Him.

Little Haven is experiencing just that. Haven. A safe haven with you. Safe in her little world. Safe with you. Sometimes I'm like that with God. I don't need to verbalize my thoughts...God knows them!

I'll pray for your meeting tomorrow. I would want some answers too. I pray you reach some peace once again.

Karin said...

Oh sweet friend, it is totally understandable that you would have some low moments. Sending a big hug!! I will pray for wisdom for the therapists tomorrow. Has anyone ever mentioned the possibility of a condition called 'speech apraxia?' My niece has it and is in speech therapy for it.

Mom Of Many said...

Oh sweet friend,

I am so sorry for your pain. You know all this, but your precious Haven was created by God with a plan. There is no doubt.

Your feelings and discouragement is so normal. I wish I could fix it all for you. I will pray earnestly for the Fixer of Broken Hearts and the Healer of all Diseases.

Much love, Linny

Shonni said...

My sweet sister (mommy), I want to pray for precious Haven..."Sweet daughter of the LORD of all...precious one...He loves you and will lead you where ever you go...precious one, may the LORD give you a voice...for HIS glory...because HE loves you and YOU are precious in HIS sight...sweet daughter of the LORD MOST HIGH, you are of value, and your life is PRICELESS...SWEET SISTER, find you voice for HIS glory! Even in silence, my little sister, your life overflows with the beauty of our Father God. May the LORD give your mommy and daddy wisdom to raise you for HIS glory...You are Precious and I love you!!!"
And sweet sister "no Greater Joy Mom"...(and dad)...thank you for bringing this little sister into you family and may the LORD GOD continue to give you wisdom in raising each on of your children!

Lynsay said...

I feel like I shouldn't be posting anything, because discouragement hasn't been being fought very well in my life lately! I do know however, that in the past the Lord has used times of discouragement and frustration to show me so much of His Goodness, His Mercy, His Grace and even His Healing!!! I'm trusting that He will do this for you too, because just as He loves Haven and gave her a family, He loves you so much too, you are no less His child than she is and He is always faithful! You have walked in faith all through her miraculous adoption, and He will not leave you, even when things are so tough!

Habakkuk
17 Though the fig tree may not blossom,
Nor fruit be on the vines;
Though the labor of the olive may fail,
And the fields yield no food;
Though the flock may be cut off from the fold,
And there be no herd in the stalls—
18 Yet I will rejoice in the LORD,
I will joy in the God of my salvation.

trustandobey said...

Hello,
I got your blog from Karin's site. I am sorry you are discouraged right now. It is so understandable. We all deal with shortcomings in our children that can leave us down and bewildered. At those times in my life i take comfort in remembering that these children don't belong to us. We are simply their stewards on this Earth. They fit into God's plan as He determines. It is very painful to lay down our hopes and dreams for our kids. But God's story for them is beyond what we can understand. This storm will not last forever...praise God. Haven has already touched my heart and will no doubt touch many others. I think you and your husband are very special to allow God to use you in such a way that you can encourage others to step out of their comfort zone and accept a special needs child into their family. God knows every tear you have shed over her. Obviously His eyes have been on her from the beginning to have her placed with your family. Hang in there. I will be praying that God will open Haven's heart and mind and allow her to bloom. I hope you have a better day today.
Lisa

Transformed from glory to glory said...

I have been feeling like this for the past two days. I want to see fruit in my children's lives. But let me encourage you with what the Lord asked me a few years ago. He asked me, "if there is no fruit on the vine, will you still trust in Me?" This comes from Habakkuk. If my children never have fruit from their lives, will I continue to trust the Lord. Will I still heed the voice of the Lord if He asks us to adopt again...and again? I pray that I will. Worshiping Him for who He is! Also, there is a Christ Centered website that helps families with kids that have developmental issues, it is at www.nathhan.com. Praying for you sister.

Karin said...

Re: your question on my blog about speech apraxia...my niece had no words at all. I have another friend who adopted a four year old from China with the same condition. She had no words--but now has a few. My niece is starting to say a few simple words.

Also...kids with post-traumatic stress can stop talking. Not sure how long that is considered the cause? My nephew didn't speak for 6 months after his mom dropped him off at an orphanage when he was 4 years old.

Barbra said...

Big, big hugs and prayers your way. I know you want to hear her talk to you and tell you what is going on in her head. To hear her express something in words would be so sweet. Just as you do, I know God has a good plan for your girl and for you.
There are moments, though, when so many questions cloud out what you know. We too are at the same number of months and days home. Like you, I had imaginations about what our girl would be like at this stage.
I have so many questions. Will she always be a 2-3 yo developmentally? What can I do to help? What does she NEED the most? Who does she need involved in her journey?
I will pray for you with deep, deep understanding, my friend!
Thank you for sharing.
Barbra

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