October 4, 2010

if only they knew

You want to know what breaks my heart? Well, there really are many things that make me weep. But these days, as we are the new parents of two little girls who have Down syndrome, something seems to come up more frequently than ever. Something we have had a taste of with Hannah-Claire and Haven, but nowhere near as much as we do now.

It's called reactions.

It's in our faces a lot.

While out and about the other day, Anthony got talking to a stranger. They spoke about the birds and the bees, and many other things. Then the man asked Anthony about his children. Anthony proudly told him he was a Daddy to seven children--three biological and four through adoption.  At some point in the conversation he said it, "Two of our girls have Down syndrome."

Yup, that usually does it.

The man's response?

"Oh, I am SO sorry!"

Huh?  Say what?

I would love to tell you that it is an isolated case--just a man not being very tactful.  But, sadly, it happens often.  We get reactions.

We know they mean no harm--they just don't know.

They don't know what a BLESSING these precious little ones are. 

I am too quick to point my finger at other countries and think about how quickly they right off children who have special needs.  So often I think about my children's birth countries and remember all I have been told about what little worth and value people with disabilities have in those places.

But you know what?  I am learning fast that we are not so different after all.  I'm learning that even in this, a first world country, disability is so often looked upon as "hard work", "an effort", "not for most people", "tiring", and so on.  A burden.



If only the whole world knew!



If only they knew what priceless treasures from heaven these special children are. 

If only they knew that every therapy, every extra mile we have to go, every additional little help they may need along the way...like their little feet braces, which are working fabulously I'll have you know...



They are so absolutely worth it! There is nothing we would not do for our children.

If only they knew what sweet little personalities they have.



And how raising a child with Down syndrome really is no different to raising any other child, in our experience. They share the same giggles, the same joys, they try hard to reach the same milestones....they just take a little bit longer to get there.

And that is perfectly okay.  Slow and steady wins the race around here.  We go at their pace, not our one hundred mile an hour pace.



If only they could come and spend one day in my home and experience the love that just bubbles over from these angels--the incredible JOY that they bring.

I wish they could look into their sweet almond eyes--and see the things that we see.



Oh how my heart breaks when people say we are these "special people" for bringing them home.  Yeah, like whatever.  Are you kidding me?  WE ARE NOT SPECIAL!  They tell us, "We could never do it."  I tell them, "If I can, anyone can."  It's the truth.  I am a flawed human being who has as many bad days as good days.  I mess up all the time and have to get back on track.  I am nothing without my Savior.

It does NOT take a "special person" to parent a child with any kind of special need.  It only takes a person who can love. If we give birth to biological children who have needs, God equips us.  The same goes for adoption.  He equips us.  It's as easy as that.

If only they knew.

Harper agrees.



Sorry?

For what?

For the fact that we have the indescribable blessing of waking up each and every morning to the delightful squeals that greet us as soon as we walk into their bedroom?

Sorry that our arms are never empty?

Sorry that we are loved by these two little girls more than words can say?

Sorry that we have the honor and privilege of watching them achieve new things?

Sorry that we count it a blessing that our nest will never be empty.

Sorry for the joy that they have brought into our home?



And then I remind myself that I used to be the same way---people just do not know.

If only they did.

80 sweet thoughts from friends:

Molly said...

Whenever I see kids with DS out in my community I get SO happy. and then later I go "mom/sis/friend That boy/girl/man/woman has down syndrome! One day that will be my reece's rainbow baby shopping in target/buying a coffee/walking down the street!"

I get so psyched when I see kids with DS. It's awesome.

Heather said...

Oh my goodness. I've been reading your blog for what seems like forever. I just have to say the girls are so cute! AND they are just flourishing. You can see the changes with every pic you take it seems!

Amy L said...

Beautifully said! And I couldn't agree more:)

Anonymous said...

Is that Hailee standing??? Amazing what a little love and sunshine will do. Her hair looks so soft and healthy now as well. You are so very lucky.

Ellen

Mom to 9 Blessings! said...

Hugs!

If only they knew that God has a special plan for every LIFE! That these children are precious beyond words with the capacity to outlove all of us put together. If only they knew so does HE the one who created them perfectly and fearfully!

I love you sweet friend! I can't get over how much the girls have changed already! GORGEOUS!

My heart overflows with joy!

Jill

Mama D.'s Dozen said...

What a beautiful post!

We have had several close friends over the years with Down Syndrome children. Everything you say is so very true.

My husband had such a wonderful bond with a young boy with Downs that his parents asked us (who already had 8 children) if we could be in their will to take care of their 5 children if something were to happen. Why? Because they knew that we would love their child with special needs.

You are BLESSED with each and every child that the Lord has brought into your family.

Laurel :)

The Wendler Family said...

LOVE THIS POST!! What sweet baby girls you have! They seem to be blossoming in your love and care. :)

Glad those feet have those great braces!

Karin said...

They are so adorable and precious. I used to be just like the people you mention--and now I have learned better. Keep showing your beautiful family to the world and you will inspire more families to adopt precious little ones like Hailee and Harper.

Angie said...

Oh, sweet Harper...please do not fall backward off that chair! I could feel myself reaching out just in case! :) Adeye, I don't know about you, but I think it is so much fun picking out girly prints for the braces. Your girls are so sweet. I hope one day our families get to meet in person!

Annie said...

Beautifully put Adeye and so very, very true!!! You are so incredibly blessed with ALL of your precious children!!!

Sally-Girl! said...

Okay my heart swells seeing Haliee standing at the coffee table!!!! Just look how far she has come!!!

Your post makes me miss Gracie even more!!! I can't wait to experience what you are with my Gracie!!!

Sally

Nicole A. said...

What a beautiful post! Thank you so much, I have very limited exposure to DS, and I appreciate all that you write about it. The girls are so precious! Is Hailee standing?! (Oh my goodness!) What blessings they are - you can tell even in still pictures that they must be the sweetest little girls!

All the best,
Nicole A., now in LA

Jodi said...

You got it right Adeye! Artiom teaches our whole family how to slow down and love, and to stop and cheer for the simplest accomplishments. It makes everyday more meaningful.

And Hailee looks so nice in brown :)

Bethany said...

Amen and Amen!!

quilt-n-mama said...

oh my goodness. Look at your sweet Hallie... she's standing! And Harper, I just love her little face, I just want to snuggle:)
Thanks for sharing your heart friend,
Gayly

Musings said...

That's the first pic I've seen of Hailee standing! Praise God!

I completely understand and agree with what you are saying in your post. But at the same time I doubt that people are trying to be mean or thoughtless in their words. I am sorry that there has to be pain and suffering in the world. Sorry, any child has to go through struggles and hardship. But so very happy for your family and the miracles that you see daily! Your witness is beautiful. Maybe that's what they mean too - I hope so!

Gwen S said...

As a parent through adoption and a parent of a bio child with DS, I have tears running down my face as I read this post (a common occurrence upon reading this blog!). Our children with 47 are so blessed. Yes, slow and steady wins the race -- and the we reap the reward as we watch!

Henry (my son, age 22 mos, w/DS) stood by himself today for the first time. This is a milestone for any child. But for him -- or Harper or Hailee or any child with an "extra gift" -- I know what an amazing milestone this is. And so I celebrate all of our children.

Let the little children come to Him, for they will see the Kingdom of God.

ginaology said...

Wow! Hailee is standing!!! How awesome is that!!!
And I noticed too how her hair has color now & looks so nice.
I agree with your post--people just don't know. For so long it was a "sad thing" to "happen to" a family. Many people just believe the appropriate response is sympathy.
Thank you for sharing so more people can learn from your dollies' abilities & talents & sweetness.

Laura said...

So true! I have run in to the same thing...
On the other hand, the children and I get EXCITED and HAPPY for the family when we see someone or hear about someone who has Down Syndrome!
We know what a treat they are in for!
I think people just don't know - like you said...
AND I also think that some people in the DS community make it out to be so very different and so hard that people "outside" aren't sure which way to go with their response. And "I'm sorry" seems to them to be the better choice I guess...
I have run into families that seem to be burdened by their dear child, but I would scoop them up in a heart beat if I could.

Here's a thought: (And I hope I don't offend any of your readers by this comment...)Are we really doing ourselves any favors but having all these DS groups/activists/focuses?? They all say the focus is on how much more alike we are than different, but just by having all these DS-specific things, we are actually acting like they are really different. The more we act like there is no difference, the more believable it is.
Just sayin'... :)

By the way, the girls look so beautiful! Love written all over their faces!

Suanna said...

I'm not sorry. God has given you a heart for some of his special children. If God provided us with the opportunity to adopt a special needs child, we would be enjoying the moment.

Mama said...

I am thinking the exact same thing...Hailee standing is so exciting!! And Harper is looking so big! These little girls are truly flourishing (did I spell that right) in your home. Love truly works miracles! :)

Anonymous said...

I found your blog recently through Reece's Rainbow and have loved reading the adoption stories of your children. Hailee and Harper are just beautiful! (So are the rest of your kids.) Ever since discovering RR, I have been praying about adopting a sweet angel with DS. Gotta get the hubby on board first though! :-)

Jen from Penn

bytheriver said...

thought of your girls yesterday - out to eat, the couple next to us had a baby with an extra chromosome - so cute and adorable, loved getting her to smile and laugh and her parents obviously cherished her. She was a gift to them, and probably will be to a lot of other people, bringing smiles as she grows.

Denise said...

The whole post was well written as always but the last picture made me cry!!! I can't believe that Hailee is standing!! Who would have ever thought we would see her standing up. Thank you God!!!

Tay :) said...

I couldnt have said it better myself! I have written a blog post about the same thing once (Its under, 'I'm so sorry on my blog)
I am just feed up!
Now when people say that I turn around and say "for what?" and they look at me in shock!
I used to think the same, untill Oscar :)
Beautiful post girl! Mwaaa!

Freedom Hollow Farmgirl said...

Your girls are BEAUTIFUL!

Inga said...

oh my goodness, they are so darn cute. I remember many, many and many years ago, when I was in elementary school, I used to sit in the afternoons after school with a little girl named Ruthie, she had DS and her mom didn't want her wandering off or anyone "messing" with her. They are special little children and I don't understand how people even in this country would say something like that. My mom always told me, if you can't say something nice don't say anything at all. Good grief, maybe I am blinded by this world. Those are the sweetest and cutest little girls and that Harper is going to keep you on your toes and Hailee, wow!!!! She is standing, totally amazing. Only god and the love of two awesome parents and siblings.

I know you have been told before, but thank you for sharing your story and putting up with the ugliness out there. Father, forgive them, for they know not what they do. (Luke 23:34)

jahkamakura said...

What a beautiful post! Harper's thumbs up made me laugh aloud and Hailee standing up brought a tear to my eyes. It's unfortunate adults see only the hard part of things. My son's best friend in preschool was a non verbal DS boy. His mother was forever thanking me for making my son play with him...of course I had nothing to do with it. One day I asked my son (5 years old) what he liked so much about his friend. His answer, " Lots of kids don't like to play with "S" because he doesn't talk, but that doesn't matter because he has such a big heart.". I think my son had it right.

Stephanie @ Ralphcrew said...

So glad to see the SureSteps! They do help so much, don't they? The only downside is having to actually wear shoes all day! :)

The girls really look fantastic!

Anna said...

Those girls are blossoming 100%. Hailee looks so happy and healthy and curious (I love the picture of her playing with her toy) and Harper looks absolutely adorable as usually. those girls sure are a blessing :)

Aus said...

Good morning dear lady - I don't know that I'm that far removed from 'the stranger' - or at least I wasn't until a few years ago, and so - I try to "let 'em up easy"....

I've been in law enforcement of one type or another all my adult life. A part of our training is (an unfortunate reality) personal self defense - and a lot of that just has to be 'full contact'. Sometimes when you are training you'll land a blow that 'triggers' the full on fight response of your partner. When that happens your job - and the job of your observer - is to wrestle the guy or gal down and hold them until the get themselves under control - and the you "let 'em up easy"....

Until we ventured into the arena of special needs (I prefer the term 'special kids') adoption I would have felt the same way about kids with Down's....but somewhere along the way I got past that....and I don't know how or why that happened.....but maybe it was having to read 'the list' of what we might be open too and getting that sick feeling that makes you want to scream "but these are people - kids - how can you expect me to pick"....

Yeah - we understand exactly how you feel - but having been that 'stranger' once upon a time (but never tactless enough to verbalize it!) - I'm willing to let 'em up easy on that one!

hugs - you guys bring lots of joy to my life - just so you know!

aus and co.

hartelijk said...

I can imagine a little bit what it must feel like,
we are hoping/praying/working hard to adopt one or two of these precious one too, and i wonder about how it will be, i know i sometimes look twice when i see someone with special needs, it just happens and
a person with Down Syndrome...
i think they are somehow radiant, i just have to look and smile....
not always knowing how that will be interpretated.
Be patient and share your angels through these wonderfull posts and pics, THANK YOU FOR THAT! :)

trustandobey said...

Great post, Adeye! Watching the girls blossom from this side of the computer screen is just awesome! They are such a testimony to God's faithfulness! Beautiful photos!
Lisa

Erin Michelle said...

It makes my heart sing every time you post pictures of these two :)

I love seeing them blossoming more and more in each set of pictures. Oh what I would give to meet them in person, their beautiful little personalities are just leaping out of the screen at me all the way in Australia! <3

Erin xx

Kathy said...

Surprisingly, I find most people ( in my small "Christian" American town) think the weak, disabled children are not worth the trouble. Until, they see my special needs daughter laugh and reach for a hug. Then, I start to see some "light" come on their face..like they get it now. That these special children are real,beautiful children that God has a great big purpose for !
Great post !!! I love your blog.

Brenda said...

First of all, LOOK at Harper's ponytail!!! She looks so big! :)

And I cannot believe how awesome it is to see Hailee standing up! Is that what the foot braces are for? She looks so pretty in that big-girl dress standing there!

I would LOVE to see them squeal first thing in the morning when you walk in their room. I cannot believe how God has turned their crying to laughter.

~Trini C.~ said...

They are so sweet! I know several girls my age (12-14) who have DS and they are the SWEETEST girls I know! They NEVER say anything with intent to hurt you (as some kids without DS do). They always give me hugs. My mom was an OT and worked with DS kids but I really don't think that has anything to do with how I feel about these special girls! Any time I see a child with DS, I get so excited! They're different from everyone else and that what makes them so special! Not special needs, just plain SPECIAL!!! :)

Kat said...

It is so wonderful to see Hailee standing! And Harper is starting to look more and more like a little girl instead of a baby!

Your blog has helped my husband a lot with his reservations about adopting a child with DS. You were bringing your girls home just as he started to warm up to the idea and I think that watching Hailee blossom has been an incredible experience for him.

The other day I talked to him about adopting from Russia because we don't meet the restrictions for Ukraine and his response was to ask me if the kids in Russia faced the same conditions as the kids in Ukraine because he wants to adopt the kids who need it most, just like your Hailee.

So thank you very much for sharing your journey. It has meant a lot to me and my family. I look forward to reading more updates on the girls.

Anonymous said...

Your girls are lovely. All your children are lovely. But you are wrong because you are a special person. A very special person. Most people are not cut from the same cloth as you are. I know that I could love a child with Downs Syndrom and I would love to never have a empty nest but my worries are a fact someday I will be dead and if I had such children they would need to have someone in the nest with them. My 24 yr old and his wife would not want the responsiblity and I don't know at this point in time what my 7 and 5 year old would want as adults. If I were younger then I am now I would probably answer differently.

Andrea

annie said...

I love the pic of Harper's thumbs up! Oh, she is sweet! And Hailee is just an inspiration to me. I hope God will ransom a child like her through us one day. Husband not totally on board yet, but close...

I am so blessed by your whole family. Might seem strange to you, since we've never met, but the Salems have really impacted my heart through the internet, across the country.

God bless!

Cindy said...

Beautiful post, thank you.

Shari said...

Beautiful post Adeye and so excited to see Hailee STANDING!!!

hopeful one said...

Oh my golly!!! Look at your girls blossomming!! While I dont know if I will ever meet you in person, I sure am grateful to get a small glimpse of your life and the light that the Lord allows you to bring into this world! Keep speaking the truth...because of Gods grace one heart at a time can be changed.
Trina

Dawn said...

I know exactly how you feel. My daughter has an extra chromosome, just not the #21. She is also medically fragile.

The thing I hate the most is when I'm told how "You are such a strong person & I could never do what you do".

Well, if your "typical" child got sick, then yes you could. I am no stronger than any other mom. 99% of moms do what needs to be done. We just have different issues to deal with.

I understand that people are really saying, "I'm glad it's you & not me" when they tell me they couldn't "do it". But that's okay. I don't begrudge them that. I will take my situation any day because in the end, I have a child who loves me unconditionally. There are no teenage tantrums to get through, no "I hate you". Just a perpetual toddler who smiles after every seizure and gives the best hugs & slobbery kisses in the world.

Jennifer said...

I was born with spina bifida and am a full-time wheelchair user, and as an individual with a disability, I tire of the reactions as well - they are something from which I will never escape. My disability doesn't define me, but it has so impacted the person I am that I would be an entirely different individual if I didn't have spina bifida. I have a "birth defect", but the TRUTH is there was no defect; God beautifully crafted the hole in my back with His very own hands, with love and care, knowing the amazing plans He had for me to fulfill just the way I was created - just the way I was fearfully and wonderfully made. He gave me the talents and the abilities and the words to be a part of the body of Christ and further His kingdom. Yes, I am different, but we are told, "Do not conform any longer to the pattern of this world" - I was never meant to conform! And through Christ, my mind has been renewed and changed to see my disability as part of God's perfect plan. Despite the pain and limitations, I never would have wanted to have been born without my disability - having spina bifida has been such an incredible blessing in my life. Knowing that around 90% of pregnancies affected by spina bifida are terminated because most people in our country cannot tolerate "imperfection" breaks my heart daily. Pity breaks my heart daily. How can so many people miss such incredible blessings? I am so grateful to have a mom and dad who saw me a blessing instead of a burden.

Jennifer said...

I was born with spina bifida and am a full-time wheelchair user, and as an individual with a disability, I tire of the reactions as well - they are something from which I will never escape. My disability doesn't define me, but it has so impacted the person I am that I would be an entirely different individual if I didn't have spina bifida. I have a "birth defect", but the TRUTH is there was no defect; God beautifully crafted the hole in my back with His very own hands, with love and care, knowing the amazing plans He had for me to fulfill just the way I was created - just the way I was fearfully and wonderfully made. He gave me the talents and the abilities and the words to be a part of the body of Christ and further His kingdom. Yes, I am different, but we are told, "Do not conform any longer to the pattern of this world" - I was never meant to conform! And through Christ, my mind has been renewed and changed to see my disability as part of God's perfect plan. Despite the pain and limitations, I never would have wanted to have been born without my disability - having spina bifida has been such an incredible blessing in my life. Knowing that around 90% of pregnancies affected by spina bifida are terminated because most people in our country cannot tolerate "imperfection" breaks my heart daily. Pity breaks my heart daily. How can so many people miss such incredible blessings? I am so grateful to have a mom and dad who saw me a blessing instead of a burden.

Anonymous said...

Just beautiful words! Hailee and Harper are so adorable, I know I would love to cuddle them! You're right...if they only knew!

Lisa V

Katherine T. Lauer said...

Thank you for sharing. People think I'm crazy because I've had it on my heart for three years now to adopt a child with DS. My husband is open to it but doesn't understand. But every so often I "meet" (like, on a blog) others who "get it" and I know I'm not alone! Or if I am crazy, I'm crazy along with some really good people!

Stephanie said...

WELL DONE!!!! Do you mind if I share your blog link with people on my blog? I'd love for people to read this b/c it is exactly how I've felt for years. I hear all kinds of things. Beautifully said in this post.

Linnea said...

I love your kids and am so happy you have them. My husband and I wanted to adopt a child with DS. Our first adoption was of a child with Trisomy 8(q2). While my husband was talking with a coworker they ask about our kids and he proudly told them and when he said Noah had trisomy 8 he said oh man I am so sorry you got stuck with that. My husband said, no we chose to adopt him. People always ? us as to why we want to adopt a child with DS and I feel like I should have some profound reason but all I have is why wouldnt i want to adopt a child with ds??

be blessed

ashlee

Milena said...

That last picture of Hailee standing up makes me cry and smile at the same time. Incredible how far she has come already! And her blackish brown eyes are something special - as are Harpers sky-blue ones! You are so blessed!

Then I still think it takes special people; more patient and loving ones. I wish I was that way...

Kate said...

I am very familiar with the reactions & ignorant comments that get uttered by people who do not "get it" and you're right ~ they are really missing out. The blessings that children with special needs bring to a family are innumerable and it's only when someone "joins the club" that they begin to truly understand it.

I'm SO happy to see your beautiful girls! Every time you share new pictures of them, I smile. Harper's personality is just bursting in every picture in this post and Hailee's curiosity about the world is so obviously growing! They are a testament to God's love... thank you for sharing them, and your life, with us all!

Wendy said...

Amen, Sista! You preach the gospel truth. No...seriously, I feel the same way about my little angel baby with DS. People just don't know. I didn't know before her. It's just ignorance on all of our behalves. That's why it's our job to tell the news. You keep telling how blessed we are to have them.

Jennifer said...

I would love to spend a day in your home. Your children are beautiful - each and everyone of them. It has been amazing to see the growth and changes in Hailee and Harper. I can only imagine how much joy they bring to your lives.

Brianna Heldt said...

Oh goodness I know. It's so sad. I honestly think people DON'T KNOW what to say or what to think when it comes to Down syndrome.

When I mention to people that we're in the process of adopting two little girls, and if it comes out that they have Ds, I can tell that they are thinking through the whole thing...should they say they're sorry etc. It's been interesting.

I think part of the Ds confusion comes from how Ds is seen and talked about in the Ds community at large. I was SHOCKED reading a couple of books about Ds--WRITTEN BY PARENTS OF KIDS WITH DOWN SYNDROME--that basically did make it sound like this horrible, awful thing. Thus I think people don't know what to say.

Just last night my husband and I were talking about how we will discuss Down syndrome in our family. To us, "different" or "unique" is NOT equivalent to "less" or "disadvantaged." And we plan to live that out.

God has blessed each of us in special ways, and some are born with that sweet extra chromosome. What a boring world this would be if we were all the same!!!

And, oh my, those sweeties are SO PRECIOUS! Look how far they have come! LOVE IT!!!

The Tam Family said...

Adeye, I love your family and your posts but I have to laugh, why was Anthony talking to a stranger about the birds and the bees?? Back in my day (I'm 40), the birds and the bees talk was "the talk" parents had with their kids about ahem grown up stuff. Anyway, precious kiddos, you're such a good mom.

Love wins,
Renee Tam
5cajuns.blogspot.com

The Tam Family said...

Adeye, I love your family and your posts but I have to laugh, why was Anthony talking to a stranger about the birds and the bees?? Back in my day (I'm 40), the birds and the bees talk was "the talk" parents had with their kids about ahem grown up stuff. Anyway, precious kiddos, you're such a good mom.

Love wins,
Renee Tam
5cajuns.blogspot.com

michelle-renee said...

I have been reading your blog on and off - Im a Mom, special ed teacher, and both my girls have special needs.

I feel differently -although I do not want pity or sympathy; having special needs children is exhausting. I see your little one has sure steps - mine finished with hers a bit ago - and even that as an example. Scheduling appointments to get the script, get the fitting, go back and getting them, finding shoes w/o toe caps to accommodate them -it is tiring at times.
And I worry for my oldest who is on the autism spectrum - when she is older -will people be there for her to break down the simplest tasks so she understands them? Will she find a partner who will be patient with her when she is unintentionally rude or fails to see or understand him?
The kids turn into adults and sometimes the cuteness wears off with the rest of society.
As a teacher, I worry. I have middle school kids with mild mild special needs. I bend over backwards and support them and what happens when they move into high school with 1000 other kids?
I dont think special needs children are a burden and at times it is exhausting.

sylvia said...

I agree with what Musings, Jennifer and many of the others have said.

I don't think it's meant as a slight to your girls or in any way question whether you find them delightful as daughters/sisters/etc. It's just for lack of something better to say.
You wouldn't walk up to the parent of an autistic child and say "That's great!" even if that autism is associated with incredible savant abilities. The same goes for any other disability, genetic difference, illness, etc. -- people just don't feel comfortable saying "That's great!" or "How wonderful!"

Your difference, whether it's DS or something else, need not define you, nor does it negate your wonderful qualities -- I don't think anybody is questioning this. But the fact remains, our DS angels will face a life with more struggle, discrimination and far fewer opportunities in education, employment, friendship and even (romantic)love. That's nothing to celebrate; nobody deserves the hardships these wonderful kids will face, all because they're born with something extra.

So when people say they're sorry, that's what they're sorry for -- they're sorry for all the hardships that are likely to come along with a diagnosis.

-Sylvia Truewell

Charlotte said...

Hey, Hailee is stand up, good job sweetie.

You don't know but i'm falling in love with your little girls.

Every day i visit your blog and hope discover news about Sweetie and Smiley ( miss smiley is for Harper).

I worked with SD children, I know that it'is joy, work, love and more joy and love.

4 boys in AZ. said...

Such sweet blessings you have. Hailee and Harper are simply adorable. So happy you have them and they have you.

Blessings,
Barbara

Teri said...

Wow! Beautiful, beautiful post! Look at those sweet bundles of love!!

Jennifer said...

I am sorry too....that he (and others that make these comments)has not been lucky enough to experience the love that these special angels bring:-)

Anonymous said...

I laugh every time I look at pictures of Hailee and Harper! They are so full of life and cute. I guess they minister to me 'cuz laughter is medicine to the soul!!! Just thought of that--thank you :)

Jet said...

I know exactly what you mean. My little brother had Down syndrome and he was an absolute joy!!! The day he died was the worst day of my life.....

Jet said...

And I have to ad: WOW! WOW! WOW! Look at Hailee!!!! She's GORGEOUS!!!! What a difference with only a few months ago.... Amazing!

Andrea said...

If only they did... Thank you for being the momma that is willing to be the voice and heart for these kids! YOU ROCK! :)

Matthew said...

There wasn't a time long ago that I used to think of people with disabilities as inferior. I am ashamed to say this. Thank you for this post. I think that most people don't even realize what they are doing, although that doesn't make it right or justifiable in anyway. I didn't until a friend at Bible college pointed it out to me. I had to do a lot of soul searching. You are correct in saying that anyone who loves could it. It a takes a willingness to be used by our God without shame! Thank you for writing this!

Qadoshyah said...

Hi Adeye,

I've chosen you to be one of the recipients of the Sunshine Award: http://gotdownsyndrome.blogspot.com/2010/10/31-for-21-sunshine-award_06.html

Qadoshyah said...

And what a great post! I so agree :).

Sarah said...

I totally know what you mean about feeling weird when people say you are so special. It makes me cringe and I could never quite figure out why for the longest time! One of my best friends said to me, "I could never do what you're doing" while we were in the process to adopt Zoya. I felt so hurt by that comment because the underlying message is not that they never COULD do it, but that they wouldn't ever want to. I just replied, Yes you could, if God called you to, you certainly could. Being Zoya's mom is full of challenges, but no more than being a parent to any other child in this world. I too wish people could see how children with DS are a gift...Zoya sure has helped us to stop and savor every single sweet moment in this short earthly life!
Sarah
www.angeleyesadoption.blogspot.com

groovy mama said...

Wonderful post and you are so right, It is all in the eye of the beholder! I look at all SN and think they are perfect to me! Perfect to GOD, why doesn't others see that? When we told our FAMILY about our dear Ella they were NOT happy for us, why a SN one, Why???? Well let me tell you, NOW they SEE and NOW they FEEL! Our Ella has missing and deformed hands and feet, that is NOTHING TO ME!
Thanks for sharing and God bless you, you are a beautiful soul!
hugs-Donna

Angie said...

I haven't looked at your blog in a while, and when I saw these pics of Hailee, I noticed she looks so much healthier--her face is rounder and her hair is longer. Such a blessing to see how things change when you are loved and cared for!

Anonymous said...

I work in a store and just love it when when my regular customers who have down syndrome come in to buy a soda or something with their helpers (they are adults). Theres always a ready smile and a wave and kind words from them to brighten the day.
And I can't believe how grown up the girls look!! Amazing!

Rachel said...

I love those pics and I love the fact that your family is so blessed to have those girls in your lives!! They are just precious and you enjoy those hugs and kisses and WOW I just can't get over how different they are looking and the smiles are beautiful!!!

Melissa M said...

Beautiful post! People who actually know my daughter know there is nothing to apologize for. She is absolutely amazing and I wish more people knew people with Ds.

I LOVE the picture of Hailee standing!!!

Becky said...

I am overwhelmed with joy and complete understanding reading your blog! I am the mother of a 16yr. old son with DS. He is the light in our lives and the most challenging of my 5 kids, but so worth it! I found it interesting about what you said people have told you...I could never do that. I was one of those people. About 17 yrs. ago I was visiting a friend of my MIL and this friend had a son with Downs. After leaving there I made that same statement. I could never do that, raise a child with special needs. Little did I know that God was preparing me for my special angel that arrived within the next year. We did not know he had Downs till he was born. Looking back now I am so glad that God believed enough in me to make me the mother of this wonderful young man!

I look forward to watching your beautiful daughters grow up. It brings a smile to my face seeing their achievements. It brings back memories, sweet memories for me. Thank you for sharing.

God Bless! Becky Bennett
www.babygirlbennett.blogspot.com

Mama Grits said...

Never, never a burden..always a blessing!

Anonymous said...

They're sooo adorable. You must be so proud! Its great to see kids with DS thriving.

Jet said...

You should really have a look at this:

http://www.downsupside.com/index-uk.php?page=page&cat=3&page_id=165

I grew up with a brother with Downs, and these photographs just touched my heart!

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