There are so many things about living in our modern day culture that drive me crazy. Okay, so some things I just darn well hate. One of those things is how we feel the need to "fix" everything. If it's broken, just fix it. Most of the time we "fix" something by going out and buying a new one. Easy! Boy how things have changed from a hundred years ago when people actually made do with less-than-perfect things. These days we're all about perfection. We're all about living in debt to support our perfect lifestyle. Our homes must be perfect, our cars need to be upgraded constantly, we're bombarded with never ending ways we can perfect the way we look...everything must be picture perfect.
And sadly, so must our children.
Even our children with special needs.
It drives me nuts. When did we ever become a society who cared more about what our children are instead of who they are?
Everywhere I go it's the same old same old--therapists and people in the know recommending ten thousand therapies (both old and new) that "are sure to get your child functioning like a normal child." Are you kidding me? Everyone wants to "fix" my children--not today, certainly not tomorrow, but like yesterday. Don't get me wrong, I know that they mean well. But why the urgency? What's the rush?
You know what? I don't care about that stuff. I don't. We never set out to adopt four children with special needs so that we could try our darndest to make them perfect as soon as their little feet hit American soil. We don't even want to "fix" them. It's not going to happen.
Maybe we just see things differently around here. At least these days we do. We have changed so much since adopting our first daughter with significant needs. Haven joined our family twenty months ago as a frightened child who cowered away in every corner out of fear of being beaten. She was terrified of anything and everything that moved. Naturally we wanted to help her. The advice? Put her in a public school with thirty kindergartners and let her "immerse" herself in the language and the culture. Give her a place where she can have every therapy under heaven and earth to help her catch up with her peers.
Being the dumb parents that we were at the time--we went against our gut instinct and took their advice. Bad move! Haven regressed something awful. She could not deal with thirty little children who were loud and wild. She did not trust the many therapists who tried to help her. Trust for Haven is huge. She totally went backwards. We ended up having to put her in diapers (she was 8 years old). It was a complete disaster.
We seriously went back to the drawing board and had to rethink things. We went back to what we knew all along--Haven needed a safe place. She needed her family. That's it! She did not need every therapy forced upon her. She did not need thirty other children to help her adjust to her new life. No, she needed only us, her family. We went back and told the people who were assigned to help her, "Thanks, but no thanks, this is so not going to work for our daughter in this season of her life."
A major lesson for us.
My oh my do we see things differently these day. We've eased up on trying to find solutions to help Haven speak. We do what we can to help her, and leave the rest in the very capable hands of her God who adores her. Heck, if she finds her words someday, great. If not, great. Why should we put pressure on her to speak? She communicates with us just fine. We know her needs without her even having to say a single solitary word. Why should we compare her to other nine year olds and expect her to reach the same milestones? That is an unfair expectation to place on her. Haven is Haven--she is uniquely and beautifully created in the image of an Almighty God. We have learned to go at Haven's pace--not ours!
So it is with Hailee and Harper. I promised them here that I would never push them beyond what they are capable of, and I meant it. Of course we will ensure that they do get the therapy that will help them learn new things--but anything above and beyond what is absolutely necessary can just wait for now. They have only been home for three months for goodness sakes. We know they'll catch up in due time. Right now all they really need is us, their family--so much more than they need to be carted and carried around to the things that everyone suggests I try to help them catch up. There has to be a balance with this stuff.
As far as we're concerned they're perfect just the way they are. Whether they start to walk or speak in six months, one year, or even two years is just a big whatever to us. We celebrate them just the way they are. We know that they will learn and grow because that's what children do when they are loved and cherished--they cannot help it. They soak it up like a sponge.
Yes, we will absolutely ensure that our children get the best of help available. But truthfully, most of it can wait for now. I don't care that Betty Sue's one year old son who has Down syndrome is already walking. And so what if Susie's two year old can recite the first ten letters of the alphabet. I will never compare my children to anyone elses, that just lines them up for failure. These three blessings of ours have spent the first years of their lives locked up in awful orphanages. They have endured more than my heart can stand. Right now the most important thing we can do for them is shower them with love and care and catch up on so many missed years of cuddles and kisses. That's what matters most. Home and family are the best therapy they could ever have in this season of their lives. The rest can wait.
Celebrating and embracing imperfection in a world obsessed with perfection.
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47 sweet thoughts from friends:
Did you hear me clapping from here?
AMEN! AMEN! AMEN!
I'm a little tired of people suggesting our children get this therapy or that - yes there is a time and place for that. But God is our ALMIGHTY COUNSELOR! God is OUR HEALER! God is THE GREAT PHYSICIAN! God will move mountains in their lives in His perfect timing - because HE LOVES THEM MORE THAN YOU AND I ever will!
Beautiful post once again!
Love you sweet friend!
Jill
Adeye-
You guys are just awesome! :)
I love your view point...it is ours too! God bless you.
Megan
ourtwoeggrolls.blogspot.com
Amen! I agree! Love m
Amen!
Love the picture of you and your beautiful children at the top of your blog.:)
Amy
I have to agree with your post! The competition has gotten so much; even at preschool level that I told my mom I think the next generation might have to be potty trained at 6 months and able to write their name at age 1 1/2! LOL.
Just wanted to say "Hi" being and ex-South African living in the US as well!
thank you this is what I needed now
I just tell my girls that there is no such thing as perfection this side of Heaven. You are right...all children need is the TLC of a family to allow them to reach the potential God has for them.
Lisa
Beautiful as Always!
So so true Adeye. I find myself getting caught up in wanting to catch Sofia up all the time and then I remind myself just how amazing she is no matter what. Every day she learns something new and experiences life more fully and that is all that I can hope for. For her to reach HER full potential...not mine. Thank you for this wonderful reminder.
Amen! A "perfect" post.
God bless your amazing family.
Kathie
We have a three year old little girl with DS. We have not put her into therapies and she has done great on her own! She learns at a different pace but that is fine with us! She loves life and is full of joy and that is what is important. When she was born someone gave me a book titled "When Slow is Fast Enough" and it helped me a lot. She is our 11th child so she gets lots of interaction. Her family is her therapy. Amy
YES!!!! I totally agree! It drives me nuts how people run their kids from one thing to the next--and how our kids with SN need instant therapy for their emotional issues.
One of my daughters was a perfect example of this. She came home at 14 months, terrified of everything. She made very SLOW progress toward healing but it was excruciatingly slow. Still...it was progress. She is 10 now and doing sooo well. Whenever we tried to push her a little too hard, she would completely unravel. But when my little bird was ready to fly to a new activity, she did it herself. She learned to pray for everything--for His help to face her fears--and she is utterly precious. If we had forced her to do what 'normal' kids do, I believe we would have crippled her emotionally.
Wow! This is so good. I'm saving this post so I'll remember when we adopt (older child from foster care).
I was so that Mom when Josi was Nadia's age...comparing and fretting over what Josi was or wasn't doing. I cringe when I look back now and I'm thankful that God has matured me to this point where I'm totally enjoying every aspect of Nadia--delays and all. God has truly given me the "baby" I had so desired so who am I to ask Him now to make her instantly become a "typical" 2 1/2yr old. I think he might give me a major pop on the head for that request don't you? :) :) :)
Enjoy and love on those girls! They are thriving already--we've all witnessed it through pictures and in person! (Those of us lucky enough to get our hands on those beauties that is!!!)
Good night you night owl!
Kristin
Yes...having a child on the autism spectrum, we have been learning this lesson, too. Why is it so hard to trust ourselves? We pulled our son out of therapy this past year, after a therapist stepped between my son and me when he reached out to me for comfort after she had reduced him to tears of frustration (again). On the phone the next day, she confirmed that she had done so deliberately, because he was, "looking to me for his emotional security". My thought was, "Well, DUH! He's five, and I am his mother!!" That was his last therapy session with her. I know she was doing what she believes is best, but we do not agree. Even so, it took us too long to trust our instincts and protect him. We continue to work with him at home and are exploring healthier therapy options for him, but we also just plain delight in him just the way he is!
Oh I just love you Adeye, seriously your advice is better than any doctors or therapists.
My little one is almost 4 and all I hear is "why won't you put her in preschool? She'll be so behind".
I have my daughter in classes where I've been able to participate but I'm also thinking of homeschooling, I can only imagine what I'll hear.
I also must say that so many people have this idea of what is and isn't normal. Truthfully, I know too many people that are seemingly normal but have more issues than people with disabilities or developmental delays!
Adeye - your children ARE perfect. They are who God created them to be. You and your family recognize and embrace that. God bless you.
and this is why the Lord entrusted YOU with these treasures. You my friend have a teachable spirit...and God is teaching you.
Thank you for sharing your lessons with us.
love you.
Holly
Thanks for that Adeye. Even "normal" children have people trying to fix them all the time. Not good enough grades, not in the 1st team, etc etc. Sometimes as parents (sill as we are) we think we just want the best for them, but instead we are just putting pressure on them. I have recently learned that lesson and now when other parents try compare their "perfect" children to mine, my answer is "They are doing exactly what God has createdthem to do!" Love Janelle
I love this reminder--the truth is that kids who have spent significant time in orphanages, even those without the SN label, have special needs. We get them home and expect them to act like other kids their age when their life experiences are just SO different!
Thanks so much for the reminder that they do things at their own pace, not ours or the pace our society sets! We need to remember that God put them in our family not so that they will "excel" academically or socially, but so that they'll have love and be cherished. Blessings!
Angie
Amen sister!
It is so true.
Love,
Annerieke
Amen! I was really thinking last night that I need to do a post about feeling like an alien in this world.
I wish you lived closer.
Amen to that! I so agree, and like your family, we waited to put Laura into school for 4 years. The school certainly didn't agree, but we knew it was best, and just wanted to love on her. It's what she needed, what we needed as a family, and now she's ready to take on her classroom!! But sometimes it's hard "going against the grain" of what everyone else thinks. Sometimes it's really hard, especially since I really dislike confrontation. But when it's for our kids, I've learned to "go with my gut." And just look what your love has done for your sweet girls already!!!! No therapy could do that!
HOORAH!! I have a lifetime friend, and you don't need all the fabric - suffice to say I addressed his Mom and Dad as 'Mom and Dad' - I was blessed by that and them! He had a kid brother who was born with more issues than a magazine stand. With them I went through all the 'things' that family's suffer through during the adjustment to having a 'special needs' child. Scotty would never crawl or walk or speak or any of that - he died at the tender age of 21....and being a part of his family I too went through the 'transition' from what we hoped for to what we got - and loved that kid like no other! He was a laugh a minute, had a great sense of humor, would tease us and laugh at our reactions - and as a family we 'grew up' together....
My point of all of that - until we came around to your point of view we couldn't 'do that'. Once we 'got it' - life, love, and joy came back into the home! It's all about understanding - and you guys 'got it'!
hugs - great joy for you guys -
aus and co.
I agree wholeheartedly!!
Kids need to feel safe and loved first of all. When we brougth our daughter home from China she was far behind her Canadian peers. My husband and I weren't surprised and weren't worried. But everyone else! Family friends, strangers....telling us to put her in the church nursery right away, hire a babysitter and go out without her, put her in speech therapy. occupational therapy etc etc. When we adopt our next child I will be very confident in our decision to concentrate on Love and security and trust in God.
Lisa V
powerful message! thank you, Adeye. i know it came from the Lord through you to minister to us all.
(Jumping up and down)
YES!
Adeye you never fail to nail the important things. And you say them so well! :) Thank you,
Elizabeth
Beautifully said!
I have not adopted, but I want to. And I sooooo agree with your perspective. Thank you for stating the truth so clearly and having the guts to stand up for your children's well-being even when the "world" tells you they need something else. You're a wonderful mother.
All I can say is "AMEN!!!!"
Love your hearts!!!
Laurie
What a great post! It's a timely reminder for me, and a much needed message for our world. Thanks for putting it so eloquently and passionately!
Well said.
As one special needs mom to another, I can tell you without a doubt that what you said makes PERFECT SENSE. Kids develop at THEIR own pace, not hours. Now, some therapies and such are fine but that foreceful, rigorous stuff? We gave it up long ago. We found a school we like and when they come home they play and snuggle just like any other child. We don't spend 7 days a week shuttling them to appointment after apointment. Love and family time is what is making the biggest difference. And my son, the one that I was warned would never talk? He is babbling and vocalizing and last week said, "Momma, More!" and when I asked him to repeat it? "NO."
GO with your gut. Mommas have that instinct. They will be fine.
Needed a bit of that today! :) Thank you for sharing your heart in a real and amazing way!
Blessings and love
Andrea
This spoke to me and gave me a lot to think about. The "experts" recommended that my 2 1/2 year old son with a provisional diagnosis of autism will be better served in a center setting rather than getting his multiple therapies (PT, OT, Speech, Early Intervention etc) at home. Today was his second day at the center. I was uneasy yesterday and still not at peace today.
Maybe this is my affirmation?
Perfectly said my friend!!! Perfectly said! I can't wait to get my perfect little Gracie home and let her just be Gracie who will be loved beyond measure.
If HIS intentions were for us to all be the same, He would have created us that way. All that matters is that "we are perfect in HIS eyes and just the way HE wants us to be." I am a kindergarten teacher and have to constantly remind administrators that ALL children will not be the SAME. We are all unique and different and that is what makes HIS world so wonderful.
Thanks for your insight and message.
Very well said! Parents who care and pay attention understand their children's needs better than anyone. As a parent, "listening" to your child, educating yourself, and trusting your instinct can be better than all the professional therapists in the world. That's not to say the professionals aren't needed, just that an involved parent usually knows his/her own child the best. God bless your family!
Best post I have ever read and I'm a speech pathologist!
May the Lord encourage you greatly. May he protect your heart and humble any pride that would want to listen to those in the "know." May He continue to give you and your husband wisdom and discernment on when, what and how much therapy is needed for your precious children. May He continue to be the banner of victory over your family and may your persepecive of the victory be the victory that is right for your family, not one that is based on someone elses victory. May you feel stronger and more resilient than ever in your mothering and parenting. May your home be filled with so much laughter, joy, peace, protection and provision. May every tounge that rises up to accuse or discourage bow to the authority of Jesus Christ. May your marriage be stronger than it has ever been and may your relationship with the Lord be fresh and new every morning.In Jesus Name,
Amen.
Good post, Adeye. I often wonder what we will see as God's idea of perfection when we get to heaven! My children did not have special needs, but I remember feeling inadequate when my son walked at 14 months instead of 10 months like some of his other peers or when my daughter only got her first tooth at 10 months instead of 6 months, as some of her friends did. Why did I worry? They are adults now and have teeth, are walking, talking and getting on with life in their own God-designed ways :)
It took me awhile after my now 3year old son with DS was born to even understand the difference between PT, ST and OT! I saw my friends running from one private therapist to another with their SN children and I started wondering if that is what I was supposed to do also. Shouldn't I be giving him access to the very best professionals?
I'm so happy that we decided to just stick with our Early Intervention teacher who came to the house twice a month. Other than that we simple enjoyed out little cutie! Now, at three, he is SOOO ready for school!
Now I'm about to bring home two children with DS from Ukraine. The four year old is emaciated and extremely delayed, the three year old is emotionally walled off. My plan is to love them and nurture them for months or years, until they are secure enough to handle anything else. Whatever it takes.
A loving family IS the best therapy.
Thanks for this. I was beginning to feel pressured about things I "should be doing" with Andreas. I don't care if he is "behind". He is happy, and content, and he now knows that he belongs to us, and we belong to him. If he doesn't learn another thing, so what!Thanks, Adeye.
AMEN!!!
Amen!!! All children develop at their own God given rate, SN's or not. I loved homeschooling so that I could individualized their curriculum to their level/abilities.
Thank you, this is so beautiful. You are loving these children as God knit them in the womb, just as they are!
Amen to that also!! I love this post and it speaks to me in so many ways! I agree 100% and God is teaching me so much in that area!!
I just found your blog somehow, and I'm speechless. God has stirred something up in my heart. I don't know what it means yet, but I'm sure He'll let me know.
Thank you for sharing all of this. I'm so thankful.
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